Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

October 21, 2009

The Art of the Possible

Filed under: Video, living life — Tags: , , , , , , — By Libby @ 4:31 pm

Cancer is a diagnosis feared by many, its treatment understood by few.

The Art of the Possible invites audiences into the worlds of five families living with cancer, its treatment, and what remains in the aftermath. At once humorous and haunting, producers Hayward and Harter present a narrative portrayal of families trying to create “a new normal” in the midst of cancer, and the care providers that serve them. The Art of the Possible offers the public and medical community-at-large a glimpse of cancer care that couples conventional therapies with humanizing communication practices.

Art of the Possible Demo from Casey Hayward on Vimeo.

June 6, 2008

no news is good news

Filed under: gallbladder problems — Tags: , , — By steve @ 8:19 am

I hope you live by the aphorism of ‘no news is good news’ because no news has been FANTASTIC news! If you visit any blogs/update pages, you hear the obligatory “I’ve been busy” excuses, but hey, I’ve been busy.

I start work on 9 june, so that means I finally got a job that meets my too-high-for-no-experience requirments. In terms of medical, I am happy to announce that I barely have anything wrong. When I breathe in deep I can feel an odd sensation in my lower lung area. I think I have some fluid/air caught in there somewhere, but I hope it’s not life threatening.

Here is my pre-gallbladder-removal IV that took more than four pokes to insert at Innovis

Here is my pre-gallbladder-removal IV that took more than four pokes to insert at Innovis

onward!
SDS

May 18, 2008

Hey everybody, let’s count!

Filed under: gallbladder problems — Tags: , , — By steve @ 8:18 am

I’ve decided this update will be your math lesson for the day:

I had my gallbladder out at around 2:30PM on friday…finally free of all that bad business! I’m nursing (or should I say lib is nursing) the four holes in my belly. These new additions increase the scars on my chest and stomach to a grand total of nine.

I have four from the gallbladder, three from my wedge resection (lung surgery), and two from my port-a-cath from chemo.

Out of my newest battle wounds the biggest incision is right in the top of my belly button and has six staples. Moving up my chest three inches, the next site has four staples. Those two are the most painful and are fairly sore. Halfway between my belly button and my right side hosts the other two cuts. The top one has two staples and the one immediately below it has four. They don’t hurt much at all.

That totals 16 staples in my four incisions (if I’ve utilized my college degree properly), and the first time in all my surgeries that I’ve had staples. My nurses found it odd that the doc actually put in staples. I guess not too many are used in this day and age.

I’ll have those out next wednesday and then I’ll be good as new (sans gallbladder, of course)!

onward!
SDS

May 8, 2008

this gallbladder has got to go.

Filed under: gallbladder problems — Tags: , , , — By steve @ 8:15 am

I spent most of yesterday in the ER at Innovis here in Fargo. I awoke wednesday with my gallbladder pain more excruciating than ever. I decided I couldn’t take it anymore so I went in. After a total of five and a half hours I finally finished meeting with a surgeon.

He said he could take out my gallbladder on Friday (tomorrow)–fantastic news! Enter the rain clouds—come to find out this afternoon that hospital policy has a 72 hour waiting period between meeting a doc and having surgery, unless life threatening.

They scheduled me for NEXT friday, the 16th, all the while reiterating the fact that, if I can’t handle the pain, I should come into the ER. Well, duh, I already did that. I’m just glad this isn’t universal health care, as I’d probably still be waiting in the ER for an appointment in four months!

At least I don’t have cancer again :)

onward!
SDS

April 29, 2008

still a fighter, still a survivor…

Filed under: lung scare — Tags: , — By steve @ 8:07 am

Not much new today. A nurse from the surgeon called to make sure I’d heard the good news about my labs. Of course I had. She also said she was surprised at how fast I was out of the hospital. It doesn’t surprise me though – after an amputation anything is a cake walk!

Still a fighter, still a survivor.

onward!
SDS

April 28, 2008

As the curtain draws enter stage right the blonde haired angel…

Filed under: lung scare — Tags: , , , — By steve @ 8:02 am

Let me set the mood with a little story:

The second recovery room was a tiny square, maybe ten feet by eight feet. As you enter and look to your immediate left a computer cart sits idle waiting for my vitals to be entered. In the far left corner two generic hospital waiting room chairs share a common arm, side by side. Moving along the back wall to the right, a monitor hangs overhead, right above my head. It beeps occasionally and every so often fills the blood pressure cuff full of air to make sure my heart is still beating. It is; no worries there. My bed has been wheeled to the back right corner, and I’m trusting enough of the sound structure of the hospital walls that the monitor won’t fall on my head.

It’s been around three hours since I finished my ‘wedge resection’ operation, or in my words, cutting that damn cancer out and officially making me cancer free again. I had a great few hours in the first recovery room, mostly because of the care given me by my own personal nurse, Linda. It really makes a difference when you have a great nurse helping you with your every need. But alas, I have left her behind and moved to the final phase of recovery in this tiny little room where I sit. I haven’t seen my wife or family yet, and I’m anxious to give Lib a giant hug & kiss and to show her my newest battle scars. I’ve developed quite an assortment of scars all shapes and sizes in my battle and rebattle with this disease known as osteosarcoma.

There is no door, the opening to my room is divided from the others with a wavy sterile curtain that leaves a gap of about 18 inches from the floor. This is just enough room for me to peek out and spy on the crocs, tennis shoes and dress shoes that scurry by as I sit patiently waiting. I now see a pair I’m familiar with, a pair that belongs to my beautiful bride, Libby. As the curtain draws enter stage right the blonde haired angel I’ve known by my bedside all too often. She has a smile on her face-why wouldn’t she, everything went off without a hitch. They removed my new cancer and didn’t have to open me up and go through my ribs! I was stoked, to say the least, that they had gotten the young regrowth before it could develop into adolescent osteosarcoma. Of course in medical terms there is no such thing as adolescent osteosarcoma, I’m just using it to portray my happiness that they got the tumor in its early stages.

Lib walked over to the bed and threw her arms around her husband. Carefully though, I did just have lung surgery. We had a quick kiss, she pulled back slightly, looked straight away in my eyes and said, “You know it’s not cancer, right?”

My head cocked to the left a tiny bit, my eyes squinted and I looked at her with my inquisitive face. Some say that face makes me look angry because my eyebrows come together in an angry “v”, but I wasn’t angry. I wasn’t anything but purely shocked. I couldn’t believe her. I finally muttered a pathetic “What, huh, what do you mean?,” and even a truly idiotic, “Are you joking?” Of course she wasn’t joking, who would joke about this? Not my wife of all people, not the one person who has to put up with this horrid cancer day in and day out with me.

Only a matter of seconds had passed by since hearing the news I couldn’t comprehend. You see, when I was originally diagnosed I could comprehend the news-it was just quite unpleasant. This was truly the first time I was shocked by hearing a few common words from the English language. I was shocked because we’ve never gotten good news after a surgery; we’ve never gotten good news from the lab; we’ve never gotten good news from the oncologist; not from the ct scans, not from the xrays, not the bone scans. I simply do not hear good things come from the mouths of my doctors. “You will never walk again without crutches. Chemotherapy only killed a small percentage of your tumor. We’ve found a spot on your right lung that needs to be taken care of.” These are the things I hear.

After those few short seconds of my squinting, unbelieving eyes looking into the endless blue of the eyes of my wife I hope we one day pass to our children, I put my head back on the upright bed. With my chin pointing towards the all-too-bright fluorescent light and the stubble on my neck exposed for the whole world to see, I started crying. For the second time in my life, for the second time in a hospital bed with Lib by my side, the hygienic dull walls of Fairview around us, beeps and intercoms floating through our ears, I had tears of joy. These tears followed only the tears of my proposal to Lib, so distant in time but not so distant in circumstances.

It wasn’t a tumor, I’m not ‘rebattling’ cancer. I beat it the first time. These words warrant happy tears.

Now what to do about these holes they just poked in my side and the chunk of lung I’m missing…

Set the mood, check. Next, deliver the news with a drumroll: I got a call today at 11:38AM about my lab results. “Great news Steve, the results show fibrotic tissue with no sign of malignancy. It wasn’t osteosarcoma. We’ll get you back on your regular schedule and see you again in six months.”

If you read the story above, it’s now been validated and all the emotions I felt that day (and continue to feel) aren’t full of false hope. It is official. I still don’t have cancer. No cancer. None. Fighting the good fight worked, and is still working.

I’m a figther and a survivor
onward!
SDS

April 27, 2008

still recovering…

Filed under: lung scare — Tags: , — By steve @ 8:00 am

Each day eases the sore spots bit by bit. It’s the worst in the morning. I can feel each pull and flex of certain muscles and my lung.

I’m still utterly amazed at the fact that this might not be a return of my cancer, but I won’t know positively until tomorrow or tuesday, when the pathology reports come back. Lab results are the only proof-positive of what the removed tissue consisted of.

until then I wait patiently…

a thousand ‘thanks’ for the emails, phone calls, cards, thoughts and well-wishes sent my way via computers, the postal service, phones and ESP. I don’t think ESP works but thanks anyway!!

onward!
SDS

April 25, 2008

starting the recovery process

Filed under: lung scare — Tags: , , , — By steve @ 7:58 am

I’m pretty sore today. It hurts to cough, breathe deep, sneeze, burp or put any weight on my right side. Basically anything that involves using my lung. It feels similar to an extremely sore muscle…EXTREMELY sore muscle. I’m doing ok, and I think I’ll be back in action by monday.

I’ve uploaded the relay pictures plus a few from the surgery on wednesday. Click on the picture below to get to them. Enjoy!

onward!
SDS

April 24, 2008

It’s not cancer!

Filed under: lung scare — Tags: , , — By steve @ 7:54 am

According to my post-surgical chart entry the piece removed was :
”necrotic tissue with fibrosis; no signs of malignancy”.

Nothing is official until the pathology reports come through, but the surgeon came out of the operating room and told my family he was ”99% sure it wasn’t cancer”! It’s too bad I didn’t find out for another three or four hours!

I’ll have more pictures and details when I get back to good old north dakota. prelung

onward!
SDS

April 23, 2008

good news?!

Filed under: lung scare — Tags: , — By steve @ 7:53 am

I have potentially great news, but it will have to wait until tomorrow, I had kind of a big day today. :)

can’t wait? impatient? you want a hint? ok, I’ll make it easy.
…it involves someone being 26 months cancer free and STILL counting… !!
details fast approaching

onward!
SDS

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