Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

October 21, 2009

The Art of the Possible

Filed under: Video, living life — Tags: , , , , , , — By Libby @ 4:31 pm

Cancer is a diagnosis feared by many, its treatment understood by few.

The Art of the Possible invites audiences into the worlds of five families living with cancer, its treatment, and what remains in the aftermath. At once humorous and haunting, producers Hayward and Harter present a narrative portrayal of families trying to create “a new normal” in the midst of cancer, and the care providers that serve them. The Art of the Possible offers the public and medical community-at-large a glimpse of cancer care that couples conventional therapies with humanizing communication practices.

Art of the Possible Demo from Casey Hayward on Vimeo.

April 27, 2009

“The good tears will come…”

Filed under: check ups — Tags: , , — By steve @ 8:41 am

I said this today to someone special, and it is true for us and will be true for them soon enough…

Four years and five days from my diagnoses, the good tears have come for my family. The cancer has been gone from my body since August of 2005, but ‘officially’ since February of 2006.

The scare I had one year and four days ago was moot and meant nothing!

I will elaborate on the missed check-ins/arcades/Sonic/‘Symons’ company/knives/crashed computers/critiques that have comprised our weekend.

Long story short: lib won’t be getting rid of me anytime soon…

onward Spence!
SDS

March 17, 2009

Lots of exciting news!

Filed under: check ups, living life — Tags: , , , , , , , , — By steve @ 8:39 am

First off-welcome to my new little nephew, christopher glen larson! He’s a great looking little man and I’m elated to have a nephew after 13 years of having nieces [who are growing up!].  Congratulations kathy, chadd, ashly–now a bigger family!

I will be giving two presentations, both free and open to the public, on Monday, March 30th at LAHS! One at 2:30PM with a second to follow at 7:00PM, each about an hour long. I’ve received (and STILL receive) support and well wishes from so many people in Langdon that I want to come and give you my first person account of the struggles and battles my family and I faced while I was sick and fighting for my life. I’m extremely, extremely excited!

The website re-design is coming along, lib is doing a great job! The best feature will be the ability of you all to post comments and create forums…

Work is still going great, we are in the close-to-the-end-of-the-year crunch (our year ends in June), so the team is feeling some pressure. Lib is also enjoying her new job in grand-forks, although I think she’s getting bored with the commute every morning!

If you are in Fargo on April 7th, please please please go out and support GO STEVE JONES as they are in the final round of the Q98 Battle of the Bands.  Good luck dudes!

Oh yeah, lest I forget, in health news: I have scans on April 27th (CT, echo and x-rays of my residual limb)…more good news ahead!

onward!
SDS

November 7, 2008

…IT HAS NOT COME BACK…it will not come back…

Filed under: check ups, living life — Tags: , — By steve @ 8:30 am

I’ve been around for a little over 25 years now-not too long. As with all, I was taught the basics of knowledge through grade school on up to a college diploma. That said, what I consider the most priceless and precious awareness I have learned did not come through the mouths of my teachers. You’ve heard it before and I’ve heard it before: “you learn from life’s lessons, not from textbooks.” The question is: when does that saying become more than just a saying?

It happens when you realize your paycheck disappears; it happens when your marriage falls apart but you still hold on to love; it happens when you dedicate your heart, soul and life’s work to your passion and it is ripped away; it happens when your parents die and you lose the comfort in their voice; it happens after the dull crunch and brilliant shattering of steel and glass over the yellow stripe; it happens when you are diagnosed with a disease—any disease. At what age? Different for everyone. To be honest, sometimes never for the lucky few… Can you think of when it happened to you?

At 25, I’m just starting to digest these lessons. They may seem depressing but if you break them down, shine them up and really think, you can pull some gleaming jewels from the mess. It’s that simple. Mourn for the loss, but think of how you can use that to be a better person, be a better brother, be a better friend and a better husband. A depressing and life changing moment DOES NOT DEFINE YOUR LIFE unless you—and you alone—give it the power.

Yes, I’m only 25. I have seen all of the above happen to people so close to me it burns my throat and makes my blue eyes turn red. I have had cancer. I have lost my leg. I was put under and scarred to have a chunk of my lung removed. I have been dealing with the after-effects for over 2 and a half years. But as of Monday, October 27th, 2008, I was scanned and IT HAS NOT COME BACK. It will not come back. If it does, I know how to fight it…but, to be honest—that’s a battle I can leave behind me for now…forever.

and after all this I wish it was summer again…onward!
SDS

buffalo river state park, mn, 2008

buffalo river state park, mn, 2008

January 31, 2008

24 month check-ups

Filed under: post chemo — Tags: , , , , — By steve @ 7:24 am

My 24 month checkups are scheduled for February 11. I will have a CT at 9 am followed by a visit (and a cancer-free scan reading) with my oncologist. Then onward to the cardiologist at 1:40. If the echo goes well I won’t need her care anymore. The heart tests would subsequently be carried on by my oncologist.

-If I’m clear (which I will be) my checkups will be less frequent; from every six month to every 12. Yes!

February 2, 2007

I can start walking…at least that’s what they tell me!

Filed under: post chemo — Tags: , , , , , , , , , , , — By steve @ 7:13 am

On Monday, Feb 5th I was scheduled for my 1 year post chemo checkups. I had CT scans on my chest, a bone scan over my entire body and some x-rays taken of my stump. I also met with the prosthetist. The results came back better than I could have ever imagined.The CT was clear as was the bone scan-no sign of anything that shouldn’t be there! When Dr. Cheng looked at the x-rays of my stump, he also had good news. I heard the words I have been waiting 17 months to hear…you can start walking with your leg!!! I need to use a single crutch or cane for the first month, but as soon as my skill level is high enough I don’t need any extra support. He said the bone has healed, but is very weak. He compared what’s left of my femur to that of a 70 year old in strength. I was told that in time it would become strong enough again. I now need to find a therapist who not only has worked with above the knee (AK) amputees, but with the C-leg. The leg is so developed that it has tricks and quirks that I will need to be taught. I’ve only been more excited about one thing in my life, and that’s Libby (of course).

I’m on campus a lot this semester, as I have 16 credits. I achieved a 3.75 last semester, so I feel my brain has recovered from all the things they pumped into me over the last year. Now if only we had that wedding planned…

Look for updates in the future as I move ahead with rehab.

January 1, 2007

(mom [carla])

Filed under: post chemo — Tags: , , , , — By steve @ 6:57 am

HAPPY NEW YEAR! We just received a phone call from Steve. Libby is driving him to the University of Minnesota Fairview Emergency room. Steve had gone to the gas station to fill up his pick-up. He had just finished fueling and was ready to leave when a car came, slipped on the ice, slid into the side of his pick-up pushing the pick-up and knocking Steve over. Steve fell and then slid under the pick-up. He has pain in his stump so he is going to check it out immediately. Hopefully, there are no broken bones because that would be a major setback.

November 16, 2006

(mom [carla])

Since so many of you continue with love and support concerning Steve, I felt the need to update. Steve participated in the Relay for Life both at NDSU and hometown Langdon. How exciting to see the support for the American Cancer Society.

Steve continues to doctor in Minneapolis with frequent visits there. He looks like Steve again with good color in his cheeks and a full head of hair (no-it did not grow back curly-we will leave the curls to Libby!!) His last scans shows that he is a NERD! And that is a good thing-NERD stands for no evidence of recurrent disease! Steve does experience nausea and vomiting some days, but as his digestive system continues to heal hopefully that will keep improving. His heart function at his last test was within normal readings.

Steve is taking 12 credits at NDSU this semester and is participating in some Blue Key, ATO fraternity, and GOB activities. He is tired but it takes a lot of effort to maneuver those crutches!! He does have his prosthetic leg but can’t really use it yet until he has the OK for full weight bearing. His stump causes considerable pain as it is still healing.

We are so proud of Steve and his willingness to get back to classes. He has already fought many battles and won! More exciting news is that Steve and our angel Libby set their wedding date for next summer!

We have GoSteve beanies available as well as a new shipment of GoSteve shirts. The beanies are in both Fargo and Langdon and the shirts are all in Fargo but we will have some in Langdon next week.

Words cannot express how much your caring means to all of us. We are so grateful it is NOW and look forward to even better days ahead.

February 4, 2006

(mom [carla])

Filed under: chemotherapy — Tags: , , , , — By steve @ 6:41 am

Discharged–hopefully forever!! No more chemo!!! Steve did have a delay because he has clostridium difficile–a colitis type infection. Because of that he did not excrete the methotrexate (chemo drug) as quickly as usual. BUT he is DONE with those awful chemo drugs. He will be continuing measurements for his prosthetic leg and on Feb. 20 will have complete scans, etc. to make sure that he is cancer-free. It has been a long journey, but with all the love, support, and concern of all of you, WE MADE IT!!

July 20, 2005

(mom [carla])

Filed under: chemotherapy — Tags: , , — By steve @ 8:19 pm

The good news is the scans and tests show NO metastasis in the lungs. (In osteosarcoma, the natural progression of spreading is from bone to lungs).