Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

October 7, 2005

(lib)

Filed under: chemotherapy — Tags: , , , , , , , — By steve @ 6:20 am

The past two weeks have gone by with hardly a problem. The chemo drug Steve received in mid-September (called Cisplatin) knocked him out, but the last two weeks Steve has gotten Methotrexate, which is pretty easy for him to take – the only side-effect being possible mouth sores and a little nausea. After Cisplatin Steve stared losing the bit of hair he got back after surgery, so his mom got the honor of shaving his head! Not an easy task, let me tell you.

Steve got to spend about 5 days at home, where he got to know our new cat, Persnickity aka Percy. He is the friendliest cat he’s ever seen, and he even likes to play fetch! He likes Llibby best tho. We ate pizza, tacos and ice cream: Steve has been steadily gaining weight back, however he is still 30 lbs less than when he came to the hospital in April.

We’re currently in the hospital awaiting discharge, and hope to spend the weekend relaxing before Cisplatin starts again Monday. We’ve been on a different floor than usual, 7D. This is a change of scenery from bright colors and crying babies that we had before on the Children’s floor. We even had a quiet roomate up here.

Every day seems to be getting more normal, but we still have a long road to go. We’re both excited for the GoSteve fundraiser this weekend and will be with you in spirit on that day. We listened to the radio spot on Froggy 99.com and were impressed that the event is getting such good coverage. Thanks Brandon, Stacy and Liz! And thanks to all those who helped out!

September 18, 2005

(drew paris)

Filed under: chemotherapy — Tags: , , , — By steve @ 6:16 am

Derek and I visited Steve for a couple of hours this afternoon. He was in really good shape physically – he’s not bald anymore and he even has his beard back! Unfortunately he will probably be losing it again soon, once this new round of chemo takes hold. He’s doing pretty well, but it’s hard to see the light at the end of tunnel – if you know what I mean.

He said he and Libby’s apartment was nice and that it’s a pretty good neighborhood – even though it’s in North Mpls. The thing that sucks is that he is still learning to get around on his own – and that takes time. He can’t be outside that much because the drugs he’s taking make him sensitive to the sun – so he’s pretty much inside all day.

We all laughed and joked around for awhile, which was nice. I hope it lifted his sprits some. As always, keep the calls and visits coming.

May 21, 2005

(from Eric Jerke)

Filed under: chemotherapy — Tags: , , , , — By steve @ 3:59 pm

Rodney and I went to visit Steve, he was in really good spirits. We talked for a couple of hours and he was very upbeat the entire time. He was a little dissappointed that he couldn’t start his next session of chemo because he is on antibiotics for his fungal infection. He said he hasn’t thrown up since Wednesday and that he feels a lot better. He is really hoping on Monday or Tuesday they will start his next Chemotherapy session.

He still hasn’t eaten. He doesn’t even feel hungry because they are injecting him with an IV of “food”. His hair was falling out pretty badly and he was getting hair all over his sheets so they shaved his head on Thursday or Friday. He said that he moves around a lot so he is getting a good upper body work out. As for his legs, he had a physical therapy person in for the first time last week and will most likely come in once or twice a week from now on. On a bad note, he will not leave the bed he is on until his surgery.

Steve mentioned that out of his classes, 2 of them gave him grades of an ‘A’. Libby also said 2 of her classes gave her an ‘A’. He said that he has until halfway through next semester to finish his classes. He also said that he has no motivation to open up his school books to study. Who could blame him.

One thing I didn’t know until I went to visit him was that Libby literally stays with him in a cot next to his bed. I thought this very awesome of the hospital. As of right now his surgery to remove the tumor is scheduled to occur in August. He is hoping that he will be able to come to homecoming.

He really likes having visitors, and the best way to find out if it is a good time to visit is to call Libby @ 651-216-9366. Please keep him in your prayers.

May 17, 2005

(from Josh Malnourie)

Filed under: chemotherapy — Tags: , , , , , , , , — By steve @ 3:52 pm

Endoscopy Wed 10:30am, chemo to follow after

John Hoven (ND governor) sent Steve a get well card today. Awesome!

Steve’s hair is falling out a lot more now. Libby got him a pretty sweet beanie to wear once that process is done.

Sounds like the benefit dinner in Langdon on Sunday raised about $10,000! Nice work!

No throwing up today. Hurray!

Steve was playing some grand theft auto 3 today on the playstation, so he is feeling pretty darn good right now.

Still no food going down, but it sounds like Steve is taking a total of 250ml of liquids (meds, etc) every hour now. That’s a LOT!