Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

May 25, 2009

Welcome to the new site!

Filed under: Uncategorized — Tags: , — By steve @ 2:33 pm

As you can see, we’ve launched the new site!!  Lib has been working around the clock for 2 months (a fib?…maybe) to get this off the ground.

All jokes aside, it is a beautiful site and will allow for the growth of goSteve and all it stands to represent.  It also goes to show how amazing Lib is!

I do have many, many updates and things going on in my world, but felt it a moot point to update the old style.  I have pictures, stories, trips and more to share in the previous and coming weeks and months.

Comment, comment, comment!  I’ve been wanting a comment section ever since I took over goSteve, so now we have it.  Let me know your thoughts!

More to come as we move ever…onward!

Onward!

SDS

April 27, 2009

“The good tears will come…”

Filed under: check ups — Tags: , , — By steve @ 8:41 am

I said this today to someone special, and it is true for us and will be true for them soon enough…

Four years and five days from my diagnoses, the good tears have come for my family. The cancer has been gone from my body since August of 2005, but ‘officially’ since February of 2006.

The scare I had one year and four days ago was moot and meant nothing!

I will elaborate on the missed check-ins/arcades/Sonic/‘Symons’ company/knives/crashed computers/critiques that have comprised our weekend.

Long story short: lib won’t be getting rid of me anytime soon…

onward Spence!
SDS

March 17, 2009

Lots of exciting news!

Filed under: check ups, living life — Tags: , , , , , , , , — By steve @ 8:39 am

First off-welcome to my new little nephew, christopher glen larson! He’s a great looking little man and I’m elated to have a nephew after 13 years of having nieces [who are growing up!].  Congratulations kathy, chadd, ashly–now a bigger family!

I will be giving two presentations, both free and open to the public, on Monday, March 30th at LAHS! One at 2:30PM with a second to follow at 7:00PM, each about an hour long. I’ve received (and STILL receive) support and well wishes from so many people in Langdon that I want to come and give you my first person account of the struggles and battles my family and I faced while I was sick and fighting for my life. I’m extremely, extremely excited!

The website re-design is coming along, lib is doing a great job! The best feature will be the ability of you all to post comments and create forums…

Work is still going great, we are in the close-to-the-end-of-the-year crunch (our year ends in June), so the team is feeling some pressure. Lib is also enjoying her new job in grand-forks, although I think she’s getting bored with the commute every morning!

If you are in Fargo on April 7th, please please please go out and support GO STEVE JONES as they are in the final round of the Q98 Battle of the Bands.  Good luck dudes!

Oh yeah, lest I forget, in health news: I have scans on April 27th (CT, echo and x-rays of my residual limb)…more good news ahead!

onward!
SDS

January 24, 2009

oh thriving economy, where art thou?

Filed under: living life — Tags: , , , , — By steve @ 8:34 am

It’s been a long time! I hope everyone had a fun Christmas and enjoyed the time with family and friends.

lib and persy, fargo nd, 2008

lib and persy, fargo nd, 2008

As with a lot of families, our life has been a bit turbulent as of late. The company that lib worked for, psa mags, laid off 24 people over the course of a month. After almost 3 years of loyal service, she was a casualty. On to bigger and better things! (The link to the in-forum article will only be active for a few days. They only allow people to view articles for up to seven days.)

I have an interesting update on my leg, and it’s quite comical! Due to the intricacies of the C-leg, it has a warranty. One stipulation of that warranty requires me to send it in for maintenance once a year- an oil change, if you will! Among other things, they replace bearings, swap out the fluid and test the computer chip. The loaner leg I was given (yes, loaner leg-kind of like the dumpy Ford Taurus you get when your car is in the shop!) has massive wear-and-tear, and functions slightly different than mine. It took a few days to get used to the swing and resistance of the new leg, even though all the options were set identical to mine.

I’ve included some pictures.

I’m going to start speaking publicly more often, and I’m going to come to Langdon the first half of this year to tell my story to all that supported me during the tough times. I will advertise as much as possible and it will be open to the public. More info to come as I know more. I’ve booked one more speaking engagement and have started discussions for others. I’m working with lib and Jay Peltier to make this happen–he is a great guy and amazing to work with. I met Jay at NDSU through Blue Key and have stayed great friends since!

Look for a complete overhaul concerning the design and layout of gosteve, as we are going to bring in more functions, different features such as posting comments, more pictures and an overall professional feel. Lib will work her magic and produce a great site. I’m excited!

onward!
SDS

July 29, 2008

…the death of Randy Pausch…

Filed under: living life — Tags: , , — By steve @ 8:27 am

My mind has been wandering back to the treatments, the physical and emotional pain and the fight for my life waged by me, the courageous love of my life and my amazing family. Two specific things have brought me back to that terrible time which is quite unpleasant to visit. The first is the close of one full year of pure wedding bliss! The second is the death of Randy Pausch.

You may or may not have heard of Randy, who’s “Last Lecture” took the internet by storm. When Randy, a professor at Carnegie Melon, found out he was dying of cancer he decided that his last lecture would be his way of giving the world his best thoughts and advise. I viewed the video when it first hit the web a long while back, and haven’t thought much about him since, until last night. Diane Sawyer aired a heart wrenching interview where he showed his grace peering into the dead-black eyes of the grim reaper…the fact that he will lose his children, his wife and ultimately his life. I had those same thoughts as I turned my head to the side to face my future wife, the green curtains of floor 5B creating a surreal backdrop. I had those same thoughts as I lowered my head into the tan basins that I vomited in over and over and over. I had those same thoughts as I watched the cruel and toxic drugs course through the clear plastic tubing straight into my frail and fragile body. I didn’t have kids- I had nieces and sisters and parents. I didn’t have a wife- I had a brave young wife-to-be. But I did have my life, and I still do. I too looked into those dead-black eyes-sometimes in the curtains, sometimes in the puke buckets, sometimes in the chemo.

year one anniversary trip, duluth mn:.:july 2008

year one anniversary trip, duluth mn:.:july 2008

“My leg hurts. I get tired easy, the leg doesn’t fit the same every day. I have to take pills every day. I have checkups.” So what? I’m alive. Not a day goes by that I don’t remind myself that I am still here because we all fought, and with part luck and part medicine, I open my eyes every morning. I do not take it for granted. I think about it each and every day, and I hope I’m able to think about it for a long, long time.

onward!
SDS

June 27, 2008

life is moving along

Filed under: living life — Tags: , , , , , , , — By steve @ 8:22 am

Week three down at the new job and I know that things happen for a reason. I love the people I work with and the work that I’ll be doing. It was worth waiting for!

They are sending me to Seattle for a week in July to attend a Microsoft conference to learn about my new specialization…amazing!

In my spare time we (we = my band: a message of bullets) have starting tracking the rough recordings that will eventually be ‘works of art’. If you hear them at any point please remember that beauty is in the eye of the beholder…or in the ear of the beholder in this matter.

in the makeshift studio, 26 june 2008

in the makeshift studio, 26 june 2008

another from 26 june

another from 26 june

I feel great and Lib and I get our matches of bocce ball in at least 2-3 times a week. This leg is one of the most amazing things in my life. I think of what I am able to do everyday, and what I would be doing if the c-leg didn’t exist. I can carry a 38 lb tub of cat litter from the car into the apartment. It’s not a pretty sight, but I’m doing it with no other assistance. I do wake up grateful every single morning, even if I also wake up groggy!

onward! [now more than ever]
SDS

April 28, 2008

As the curtain draws enter stage right the blonde haired angel…

Filed under: lung scare — Tags: , , , — By steve @ 8:02 am

Let me set the mood with a little story:

The second recovery room was a tiny square, maybe ten feet by eight feet. As you enter and look to your immediate left a computer cart sits idle waiting for my vitals to be entered. In the far left corner two generic hospital waiting room chairs share a common arm, side by side. Moving along the back wall to the right, a monitor hangs overhead, right above my head. It beeps occasionally and every so often fills the blood pressure cuff full of air to make sure my heart is still beating. It is; no worries there. My bed has been wheeled to the back right corner, and I’m trusting enough of the sound structure of the hospital walls that the monitor won’t fall on my head.

It’s been around three hours since I finished my ‘wedge resection’ operation, or in my words, cutting that damn cancer out and officially making me cancer free again. I had a great few hours in the first recovery room, mostly because of the care given me by my own personal nurse, Linda. It really makes a difference when you have a great nurse helping you with your every need. But alas, I have left her behind and moved to the final phase of recovery in this tiny little room where I sit. I haven’t seen my wife or family yet, and I’m anxious to give Lib a giant hug & kiss and to show her my newest battle scars. I’ve developed quite an assortment of scars all shapes and sizes in my battle and rebattle with this disease known as osteosarcoma.

There is no door, the opening to my room is divided from the others with a wavy sterile curtain that leaves a gap of about 18 inches from the floor. This is just enough room for me to peek out and spy on the crocs, tennis shoes and dress shoes that scurry by as I sit patiently waiting. I now see a pair I’m familiar with, a pair that belongs to my beautiful bride, Libby. As the curtain draws enter stage right the blonde haired angel I’ve known by my bedside all too often. She has a smile on her face-why wouldn’t she, everything went off without a hitch. They removed my new cancer and didn’t have to open me up and go through my ribs! I was stoked, to say the least, that they had gotten the young regrowth before it could develop into adolescent osteosarcoma. Of course in medical terms there is no such thing as adolescent osteosarcoma, I’m just using it to portray my happiness that they got the tumor in its early stages.

Lib walked over to the bed and threw her arms around her husband. Carefully though, I did just have lung surgery. We had a quick kiss, she pulled back slightly, looked straight away in my eyes and said, “You know it’s not cancer, right?”

My head cocked to the left a tiny bit, my eyes squinted and I looked at her with my inquisitive face. Some say that face makes me look angry because my eyebrows come together in an angry “v”, but I wasn’t angry. I wasn’t anything but purely shocked. I couldn’t believe her. I finally muttered a pathetic “What, huh, what do you mean?,” and even a truly idiotic, “Are you joking?” Of course she wasn’t joking, who would joke about this? Not my wife of all people, not the one person who has to put up with this horrid cancer day in and day out with me.

Only a matter of seconds had passed by since hearing the news I couldn’t comprehend. You see, when I was originally diagnosed I could comprehend the news-it was just quite unpleasant. This was truly the first time I was shocked by hearing a few common words from the English language. I was shocked because we’ve never gotten good news after a surgery; we’ve never gotten good news from the lab; we’ve never gotten good news from the oncologist; not from the ct scans, not from the xrays, not the bone scans. I simply do not hear good things come from the mouths of my doctors. “You will never walk again without crutches. Chemotherapy only killed a small percentage of your tumor. We’ve found a spot on your right lung that needs to be taken care of.” These are the things I hear.

After those few short seconds of my squinting, unbelieving eyes looking into the endless blue of the eyes of my wife I hope we one day pass to our children, I put my head back on the upright bed. With my chin pointing towards the all-too-bright fluorescent light and the stubble on my neck exposed for the whole world to see, I started crying. For the second time in my life, for the second time in a hospital bed with Lib by my side, the hygienic dull walls of Fairview around us, beeps and intercoms floating through our ears, I had tears of joy. These tears followed only the tears of my proposal to Lib, so distant in time but not so distant in circumstances.

It wasn’t a tumor, I’m not ‘rebattling’ cancer. I beat it the first time. These words warrant happy tears.

Now what to do about these holes they just poked in my side and the chunk of lung I’m missing…

Set the mood, check. Next, deliver the news with a drumroll: I got a call today at 11:38AM about my lab results. “Great news Steve, the results show fibrotic tissue with no sign of malignancy. It wasn’t osteosarcoma. We’ll get you back on your regular schedule and see you again in six months.”

If you read the story above, it’s now been validated and all the emotions I felt that day (and continue to feel) aren’t full of false hope. It is official. I still don’t have cancer. No cancer. None. Fighting the good fight worked, and is still working.

I’m a figther and a survivor
onward!
SDS

April 18, 2008

on a positive note!

Filed under: lung scare — Tags: , , , , , , , — By steve @ 10:46 am

I thought I’d throw in some positive news so people don’t wreck their keyboards with tears :) It’s now been 10 days [I repeat TEN DAYS] that I’ve been without a cane, crutch or other assistance!! I’m building up the muscles I need to so I can walk as free as my cat Persy when he runs past us out the door to eat the grass!

I can’t tell you how liberating it is to almost have normal mobility again. I WANT to go outside, I WANT to go to the grocery store, I WANT to go to the mall with lib…well, maybe not the mall…

Despite the recurrence I’m in amazing spirits. I love my wife, my family and my friends so the positives pummel the negatives!

:.:T-minus-5 days until I’m cancer free again:.:

onward!
SDS

February 2, 2007

I can start walking…at least that’s what they tell me!

Filed under: post chemo — Tags: , , , , , , , , , , , — By steve @ 7:13 am

On Monday, Feb 5th I was scheduled for my 1 year post chemo checkups. I had CT scans on my chest, a bone scan over my entire body and some x-rays taken of my stump. I also met with the prosthetist. The results came back better than I could have ever imagined.The CT was clear as was the bone scan-no sign of anything that shouldn’t be there! When Dr. Cheng looked at the x-rays of my stump, he also had good news. I heard the words I have been waiting 17 months to hear…you can start walking with your leg!!! I need to use a single crutch or cane for the first month, but as soon as my skill level is high enough I don’t need any extra support. He said the bone has healed, but is very weak. He compared what’s left of my femur to that of a 70 year old in strength. I was told that in time it would become strong enough again. I now need to find a therapist who not only has worked with above the knee (AK) amputees, but with the C-leg. The leg is so developed that it has tricks and quirks that I will need to be taught. I’ve only been more excited about one thing in my life, and that’s Libby (of course).

I’m on campus a lot this semester, as I have 16 credits. I achieved a 3.75 last semester, so I feel my brain has recovered from all the things they pumped into me over the last year. Now if only we had that wedding planned…

Look for updates in the future as I move ahead with rehab.

January 1, 2007

(mom [carla])

Filed under: post chemo — Tags: , , , — By steve @ 9:59 am

It has been a long day waiting to hear the results of the X-Rays. I am sure that it has been even harder for Steve and Libby and sister Kathy who are in the ER. Just what everyone wanted to do on New Year’s Day!! But the GOOD news is that appears that there are no broken bones. Two orthopedists and 1 radiologist all agreed that there appeared to be no change since the last X-Rays. Yeah!!! Steve is still in some pain-hopefully he will be able to have a good night’s sleep. We will update you if we hear anything more-otherwise, no news is good news!

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