Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

April 27, 2010

Every end has a beginning…

Filed under: check ups, living life, post chemo — By steve @ 4:46 pm

Every end has a beginning, and just after 11 AM on the 26th of April, 2010, Lib and I sat in a room that we’ve sat in before.  But this time it was different-

Time after time you are told that you will get through it; one day at a time; it’s a marathon not a sprint.  All good intentions aside- all hope aside- these are not words of inspiration when I would wake up puking, puking, puking and Lib would jolt awake from sleep and replace my puke buckets dutifully after each round of heaves.  She would trudge to the tub, wash them out (they are never again clean after that putrid acid first hits the plastic) and bring them back for round two (or round 30, or round 40) before falling into the restless sleep that was unhealthy and unrelenting.

Time after time I tell people that they will get through it; one day at a time; it’s a marathon not a sprint.  I have good intentions.  I hope these words offer inspiration or at the very least hope.  Yet this sick mutation of cells rages on ravaging those innocent kids and families around the world.  Is it a monster?  Is it a curse?  Is it a sign?  Is it a test?  It is ALL of these things, but why?

I stopped asking why during the first moment of clarity I had through all the meds being forced through my skin and into my veins back in 2005.  You can’t win a psychological battle of blame; transferring the immense pain, torture, illness, grief and guilt to someone (or something) else won’t get me back to my family as the husband, son, brother, uncle, cousin, nephew and friend that faced death.  We all faced death.  I stared at my leg that was up in a sling with a screw twisted through my flesh and bone for months on end.  I knew I would NEVER take another step on that leg.  It gave me hope that maybe, possibly I would save it… but the leg never mattered.  It was all for my life.  The leg never really mattered, no matter how much we projected our worry over that insignificant bit of my body.  We fought day in and day out for the chance to experience graduations, weddings, births, new pets, grill-outs, vacations and all the great moments we have with our loved ones.

Throughout the struggle we lived by the ‘definitely, maybe’ prognosis.  “Steve, you definitely maybe will save your leg.  You definitely maybe will get chemo on Monday.  You definitely maybe will get discharged by 2pm.  You definitely maybe will walk at your wedding.  You definitely maybe will get married.  You definitely maybe will see your parent’s 40th wedding anniversary.  You definitely maybe will become a father.  You definitely maybe will actually be able to live the life that you want to give to Lib and the rest of your family.  Well, I have DEFINITELY maybe won this round.  We lost blood, a limb, innocence, tears, weight, time, youth, opportunities, sleep and even hope.

I hurt and yearn for the families of all the cancer-angels that fought and fought only to be unjustly taken from the Earth.  What’s left of me will always be fighting alongside and willing those warriors in battle to deal the final blow to their own disease.  Some will and some won’t.

Just after 11 AM, Dr. Brenda Weigel walked into the room and said the scans look amazing.  Nothing there.  I am now cancer free and we are looking towards heading off any of the side effects that will plague me for the rest of my life.  They are moving me to long term care.  My physical heart has been weakened and from this day forward will be the focus of my health…but my REAL heart has never been stronger or more full of life.  Osteo has been stricken from the top of my list.  Or as I like to think, it was beheaded with a rusty blade and buried in a shallow grave.

Become. Stronger. Juggernaut.

We, the Juggernaut, are ready for the next challenge.

ONWARD.

SDS, ERS

( & the Symons Six+ )

done

s+l, philly pa, 2007

February 12, 2010

onward…now more than ever…

Filed under: post chemo — By steve @ 4:11 pm

I would like to pay my respects to Erik.  He fought the good fight until it wasn’t fair anymore. He is strong, brave and all should be proud. I am.

He is now in a place where you don’t hurt, you don’t lose your hair, you don’t constantly hear bad news; a place where your loved ones don’t see you hurt each and every day.  There is no pain, there is no disease.

Erik’s Caringbridge

Park Rapids Enterprise page

 Onward…now more than ever.

sds

July 15, 2009

2 years (and two days) ago…

Filed under: post chemo — By steve @ 2:43 pm

Hi all-

Two years and two days ago, I walked down the isle with my beautiful bride Libby.  It was an amazing day.  It wasn’t just the love from my family, friends and all who showed their support, it was a testament to the woman I had found.  I thought, “could I be this lucky, that a girl as great as she would stick by me through all and actually follow through with it?”

Our marriage is strong, my leg is strong and we still have the cancer beat.  Life’s good.

onward!

SDS

(PS, it sure is fun wearing shorts and watching all the different looks I get from people, it’s kind of a game I play…)

April 27, 2009

“The good tears will come…”

Filed under: check ups — Tags: , , — By steve @ 8:41 am

I said this today to someone special, and it is true for us and will be true for them soon enough…

Four years and five days from my diagnoses, the good tears have come for my family. The cancer has been gone from my body since August of 2005, but ‘officially’ since February of 2006.

The scare I had one year and four days ago was moot and meant nothing!

I will elaborate on the missed check-ins/arcades/Sonic/‘Symons’ company/knives/crashed computers/critiques that have comprised our weekend.

Long story short: lib won’t be getting rid of me anytime soon…

onward Spence!
SDS

March 17, 2009

Lots of exciting news!

Filed under: check ups, living life — Tags: , , , , , , , , — By steve @ 8:39 am

First off-welcome to my new little nephew, christopher glen larson! He’s a great looking little man and I’m elated to have a nephew after 13 years of having nieces [who are growing up!].  Congratulations kathy, chadd, ashly–now a bigger family!

I will be giving two presentations, both free and open to the public, on Monday, March 30th at LAHS! One at 2:30PM with a second to follow at 7:00PM, each about an hour long. I’ve received (and STILL receive) support and well wishes from so many people in Langdon that I want to come and give you my first person account of the struggles and battles my family and I faced while I was sick and fighting for my life. I’m extremely, extremely excited!

The website re-design is coming along, lib is doing a great job! The best feature will be the ability of you all to post comments and create forums…

Work is still going great, we are in the close-to-the-end-of-the-year crunch (our year ends in June), so the team is feeling some pressure. Lib is also enjoying her new job in grand-forks, although I think she’s getting bored with the commute every morning!

If you are in Fargo on April 7th, please please please go out and support GO STEVE JONES as they are in the final round of the Q98 Battle of the Bands.  Good luck dudes!

Oh yeah, lest I forget, in health news: I have scans on April 27th (CT, echo and x-rays of my residual limb)…more good news ahead!

onward!
SDS

November 7, 2008

…IT HAS NOT COME BACK…it will not come back…

Filed under: check ups, living life — Tags: , — By steve @ 8:30 am

I’ve been around for a little over 25 years now-not too long. As with all, I was taught the basics of knowledge through grade school on up to a college diploma. That said, what I consider the most priceless and precious awareness I have learned did not come through the mouths of my teachers. You’ve heard it before and I’ve heard it before: “you learn from life’s lessons, not from textbooks.” The question is: when does that saying become more than just a saying?

It happens when you realize your paycheck disappears; it happens when your marriage falls apart but you still hold on to love; it happens when you dedicate your heart, soul and life’s work to your passion and it is ripped away; it happens when your parents die and you lose the comfort in their voice; it happens after the dull crunch and brilliant shattering of steel and glass over the yellow stripe; it happens when you are diagnosed with a disease—any disease. At what age? Different for everyone. To be honest, sometimes never for the lucky few… Can you think of when it happened to you?

At 25, I’m just starting to digest these lessons. They may seem depressing but if you break them down, shine them up and really think, you can pull some gleaming jewels from the mess. It’s that simple. Mourn for the loss, but think of how you can use that to be a better person, be a better brother, be a better friend and a better husband. A depressing and life changing moment DOES NOT DEFINE YOUR LIFE unless you—and you alone—give it the power.

Yes, I’m only 25. I have seen all of the above happen to people so close to me it burns my throat and makes my blue eyes turn red. I have had cancer. I have lost my leg. I was put under and scarred to have a chunk of my lung removed. I have been dealing with the after-effects for over 2 and a half years. But as of Monday, October 27th, 2008, I was scanned and IT HAS NOT COME BACK. It will not come back. If it does, I know how to fight it…but, to be honest—that’s a battle I can leave behind me for now…forever.

and after all this I wish it was summer again…onward!
SDS

buffalo river state park, mn, 2008

buffalo river state park, mn, 2008

June 6, 2008

no news is good news

Filed under: gallbladder problems — Tags: , , — By steve @ 8:19 am

I hope you live by the aphorism of ‘no news is good news’ because no news has been FANTASTIC news! If you visit any blogs/update pages, you hear the obligatory “I’ve been busy” excuses, but hey, I’ve been busy.

I start work on 9 june, so that means I finally got a job that meets my too-high-for-no-experience requirments. In terms of medical, I am happy to announce that I barely have anything wrong. When I breathe in deep I can feel an odd sensation in my lower lung area. I think I have some fluid/air caught in there somewhere, but I hope it’s not life threatening.

Here is my pre-gallbladder-removal IV that took more than four pokes to insert at Innovis

Here is my pre-gallbladder-removal IV that took more than four pokes to insert at Innovis

onward!
SDS

May 18, 2008

Hey everybody, let’s count!

Filed under: gallbladder problems — Tags: , , — By steve @ 8:18 am

I’ve decided this update will be your math lesson for the day:

I had my gallbladder out at around 2:30PM on friday…finally free of all that bad business! I’m nursing (or should I say lib is nursing) the four holes in my belly. These new additions increase the scars on my chest and stomach to a grand total of nine.

I have four from the gallbladder, three from my wedge resection (lung surgery), and two from my port-a-cath from chemo.

Out of my newest battle wounds the biggest incision is right in the top of my belly button and has six staples. Moving up my chest three inches, the next site has four staples. Those two are the most painful and are fairly sore. Halfway between my belly button and my right side hosts the other two cuts. The top one has two staples and the one immediately below it has four. They don’t hurt much at all.

That totals 16 staples in my four incisions (if I’ve utilized my college degree properly), and the first time in all my surgeries that I’ve had staples. My nurses found it odd that the doc actually put in staples. I guess not too many are used in this day and age.

I’ll have those out next wednesday and then I’ll be good as new (sans gallbladder, of course)!

onward!
SDS

May 14, 2008

waiting for another surgery

Filed under: gallbladder problems — Tags: , , — By steve @ 8:17 am

I’ll find out on thursday between 1 and 3 what time my surgery will be on friday. I’m pretty excited to get this done and in my past.

The pain has been coming and going, it wasn’t too bad for about 2 days but now it’s been rough in the mornings again.

Not much else has been going on…no news is good news though!

If you see my parents you can wish them each a happy birthday, they both had theirs in the last week and a half. My dad is a year older and my mom is a year younger!

onward!
SDS

May 8, 2008

this gallbladder has got to go.

Filed under: gallbladder problems — Tags: , , , — By steve @ 8:15 am

I spent most of yesterday in the ER at Innovis here in Fargo. I awoke wednesday with my gallbladder pain more excruciating than ever. I decided I couldn’t take it anymore so I went in. After a total of five and a half hours I finally finished meeting with a surgeon.

He said he could take out my gallbladder on Friday (tomorrow)–fantastic news! Enter the rain clouds—come to find out this afternoon that hospital policy has a 72 hour waiting period between meeting a doc and having surgery, unless life threatening.

They scheduled me for NEXT friday, the 16th, all the while reiterating the fact that, if I can’t handle the pain, I should come into the ER. Well, duh, I already did that. I’m just glad this isn’t universal health care, as I’d probably still be waiting in the ER for an appointment in four months!

At least I don’t have cancer again :)

onward!
SDS

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