Go Steve - Steve's Updates

Updates from Steve’s cancer-free life

April 27, 2010

Every end has a beginning…

Filed under: check ups, living life, post chemo — By steve @ 4:46 pm

Every end has a beginning, and just after 11 AM on the 26th of April, 2010, Lib and I sat in a room that we’ve sat in before.  But this time it was different-

Time after time you are told that you will get through it; one day at a time; it’s a marathon not a sprint.  All good intentions aside- all hope aside- these are not words of inspiration when I would wake up puking, puking, puking and Lib would jolt awake from sleep and replace my puke buckets dutifully after each round of heaves.  She would trudge to the tub, wash them out (they are never again clean after that putrid acid first hits the plastic) and bring them back for round two (or round 30, or round 40) before falling into the restless sleep that was unhealthy and unrelenting.

Time after time I tell people that they will get through it; one day at a time; it’s a marathon not a sprint.  I have good intentions.  I hope these words offer inspiration or at the very least hope.  Yet this sick mutation of cells rages on ravaging those innocent kids and families around the world.  Is it a monster?  Is it a curse?  Is it a sign?  Is it a test?  It is ALL of these things, but why?

I stopped asking why during the first moment of clarity I had through all the meds being forced through my skin and into my veins back in 2005.  You can’t win a psychological battle of blame; transferring the immense pain, torture, illness, grief and guilt to someone (or something) else won’t get me back to my family as the husband, son, brother, uncle, cousin, nephew and friend that faced death.  We all faced death.  I stared at my leg that was up in a sling with a screw twisted through my flesh and bone for months on end.  I knew I would NEVER take another step on that leg.  It gave me hope that maybe, possibly I would save it… but the leg never mattered.  It was all for my life.  The leg never really mattered, no matter how much we projected our worry over that insignificant bit of my body.  We fought day in and day out for the chance to experience graduations, weddings, births, new pets, grill-outs, vacations and all the great moments we have with our loved ones.

Throughout the struggle we lived by the ‘definitely, maybe’ prognosis.  “Steve, you definitely maybe will save your leg.  You definitely maybe will get chemo on Monday.  You definitely maybe will get discharged by 2pm.  You definitely maybe will walk at your wedding.  You definitely maybe will get married.  You definitely maybe will see your parent’s 40th wedding anniversary.  You definitely maybe will become a father.  You definitely maybe will actually be able to live the life that you want to give to Lib and the rest of your family.  Well, I have DEFINITELY maybe won this round.  We lost blood, a limb, innocence, tears, weight, time, youth, opportunities, sleep and even hope.

I hurt and yearn for the families of all the cancer-angels that fought and fought only to be unjustly taken from the Earth.  What’s left of me will always be fighting alongside and willing those warriors in battle to deal the final blow to their own disease.  Some will and some won’t.

Just after 11 AM, Dr. Brenda Weigel walked into the room and said the scans look amazing.  Nothing there.  I am now cancer free and we are looking towards heading off any of the side effects that will plague me for the rest of my life.  They are moving me to long term care.  My physical heart has been weakened and from this day forward will be the focus of my health…but my REAL heart has never been stronger or more full of life.  Osteo has been stricken from the top of my list.  Or as I like to think, it was beheaded with a rusty blade and buried in a shallow grave.

Become. Stronger. Juggernaut.

We, the Juggernaut, are ready for the next challenge.

ONWARD.

SDS, ERS

( & the Symons Six+ )

done

s+l, philly pa, 2007

January 31, 2010

Additions to the Symons family!

Filed under: living life — Tags: , , , — By Libby @ 4:43 am

We are proud to announce to the world that we have added TWO more to the family of Symons. On Friday afternoon Steve and I adopted two kittens by the name of Bowie and Drax. They lived together in a foster home with FM Adopt-a-pet.

Of course we already have our old man, Persnickety. He’s a 10-year-old orange tabby and the nicest and most loving cat Steve has ever had (Steve’s had quite a few cats in his day).

Full names Sir Thaxter Drax Tewksbury, esq. and David Bowie Stargazer (and the original, Sir William Milton Chatsworth Persnickety, esq.).

Here’s a quick video of our new guys:

Here are some photos:
Persy

Thaxter

Bowit

December 10, 2009

it’s always been about cars…

Filed under: living life — By steve @ 2:39 pm

Congratulations Jeff!

Last night at the Fargo Force hockey game, the Make-A-Wish foundation SURPRISED Jeff (Nelson) with his wish – his first car completely remade.  He knew his car was being redone, but he was told it wouldn’t be done until the end of the school year.  But they drove it out onto the ice, shiny and new…

The best part of the night (besides the surprise, the look on his face, and seeing his parents hugging each other as he sat down in his new ride) was when the lady from Make-A-Wish said his wish was to get his 1989 Nissan 300 ZX “Pimped”.  Some people just shouldn’t say the word ‘Pimped’…

Here is the article on MSNBC: Make-A-Wish surprises local teen

Here is the video from KVLY: Jeff\’s Make-A-Wish comes True! (This only links to the most recent story – I couldn’t find his video anywhere in their archives.)

Jeff is almost done with chemo and working hard on walking with his kick-ass new leg.  What a great night for everyone!  It’s awesome, Jeff.

onward!

SDS

October 21, 2009

The Art of the Possible

Filed under: Video, living life — Tags: , , , , , , — By Libby @ 4:31 pm

Cancer is a diagnosis feared by many, its treatment understood by few.

The Art of the Possible invites audiences into the worlds of five families living with cancer, its treatment, and what remains in the aftermath. At once humorous and haunting, producers Hayward and Harter present a narrative portrayal of families trying to create “a new normal” in the midst of cancer, and the care providers that serve them. The Art of the Possible offers the public and medical community-at-large a glimpse of cancer care that couples conventional therapies with humanizing communication practices.

Art of the Possible Demo from Casey Hayward on Vimeo.

August 19, 2009

Pretty normal life…

Filed under: Uncategorized, living life — By steve @ 3:03 pm

Hi all-

There hasn’t been much in the way of updates for me lately.  We moved from our old work building onto the Microsoft Campus last week, and the new digs are pretty nice.  Lib and I also visited a decommissioned nuclear facility in Cooperstown, ND.  We went down into the lower chambers where the Missleers would have been under pressure to insert the keys and launch the nukes.  Really interesting stuff–I recommend visiting the site, it’s called ‘Oscar Zero’.

We’ll start doing updates with photos soon, as we’re getting that feature added to the site.  Weird how summertime and real life get in the way of sitting at a computer ALL day.  I’ll get some great photos of my leg if anyone is interested.  I haven’t had any issues with my leg to report, haven’t even been to the doctor lately.  Pretty boring life, or should I say pretty normal life.  It’s about time. 

Please visit Erik’s page – support, thoughts, hopes, etc are needed for him.  Lib and I are thinking about you!

http://www.caringbridge.org/mn/erikludwinski/

onward!
SDS

July 20, 2009

New stuff!

Filed under: living life — By Libby @ 8:48 pm

I’ve added some MORE important people to the Media section of the site – www.gosteve.org/main/media – We’ll keep adding VIP’s to this section, as they are fighting the good fight and deserve recognition.

As always, check back for more new stuff. Steve and I took an adventure on some treacherous waters this weekend, so hopefully I’ll get the photo gallery going sooner than later!

Onward!

June 3, 2009

Steve – on the road to help a friend

Filed under: living life — Tags: , , , , , — By Libby @ 9:07 am

Steve is off on the road to Minneapolis to help a new friend through a tough time, and I’m so proud of him. He’s such a great example of the light-at-the-end-of-the-tunnel, both for those that are struggling with cancer, cancer-related ‘crap’ – or just a crummy day. How does he do it all with a smile? I have no clue, but he’s pretty cool. …Even when he leaves his clothes all over the floor :)

We’re so proud of you Spence (and family — usually family’s job is almost as hard as being the patient). Keep trucking!

Libby

March 17, 2009

Lots of exciting news!

Filed under: check ups, living life — Tags: , , , , , , , , — By steve @ 8:39 am

First off-welcome to my new little nephew, christopher glen larson! He’s a great looking little man and I’m elated to have a nephew after 13 years of having nieces [who are growing up!].  Congratulations kathy, chadd, ashly–now a bigger family!

I will be giving two presentations, both free and open to the public, on Monday, March 30th at LAHS! One at 2:30PM with a second to follow at 7:00PM, each about an hour long. I’ve received (and STILL receive) support and well wishes from so many people in Langdon that I want to come and give you my first person account of the struggles and battles my family and I faced while I was sick and fighting for my life. I’m extremely, extremely excited!

The website re-design is coming along, lib is doing a great job! The best feature will be the ability of you all to post comments and create forums…

Work is still going great, we are in the close-to-the-end-of-the-year crunch (our year ends in June), so the team is feeling some pressure. Lib is also enjoying her new job in grand-forks, although I think she’s getting bored with the commute every morning!

If you are in Fargo on April 7th, please please please go out and support GO STEVE JONES as they are in the final round of the Q98 Battle of the Bands.  Good luck dudes!

Oh yeah, lest I forget, in health news: I have scans on April 27th (CT, echo and x-rays of my residual limb)…more good news ahead!

onward!
SDS

January 24, 2009

oh thriving economy, where art thou?

Filed under: living life — Tags: , , , , — By steve @ 8:34 am

It’s been a long time! I hope everyone had a fun Christmas and enjoyed the time with family and friends.

lib and persy, fargo nd, 2008

lib and persy, fargo nd, 2008

As with a lot of families, our life has been a bit turbulent as of late. The company that lib worked for, psa mags, laid off 24 people over the course of a month. After almost 3 years of loyal service, she was a casualty. On to bigger and better things! (The link to the in-forum article will only be active for a few days. They only allow people to view articles for up to seven days.)

I have an interesting update on my leg, and it’s quite comical! Due to the intricacies of the C-leg, it has a warranty. One stipulation of that warranty requires me to send it in for maintenance once a year- an oil change, if you will! Among other things, they replace bearings, swap out the fluid and test the computer chip. The loaner leg I was given (yes, loaner leg-kind of like the dumpy Ford Taurus you get when your car is in the shop!) has massive wear-and-tear, and functions slightly different than mine. It took a few days to get used to the swing and resistance of the new leg, even though all the options were set identical to mine.

I’ve included some pictures.

I’m going to start speaking publicly more often, and I’m going to come to Langdon the first half of this year to tell my story to all that supported me during the tough times. I will advertise as much as possible and it will be open to the public. More info to come as I know more. I’ve booked one more speaking engagement and have started discussions for others. I’m working with lib and Jay Peltier to make this happen–he is a great guy and amazing to work with. I met Jay at NDSU through Blue Key and have stayed great friends since!

Look for a complete overhaul concerning the design and layout of gosteve, as we are going to bring in more functions, different features such as posting comments, more pictures and an overall professional feel. Lib will work her magic and produce a great site. I’m excited!

onward!
SDS

November 7, 2008

…IT HAS NOT COME BACK…it will not come back…

Filed under: check ups, living life — Tags: , — By steve @ 8:30 am

I’ve been around for a little over 25 years now-not too long. As with all, I was taught the basics of knowledge through grade school on up to a college diploma. That said, what I consider the most priceless and precious awareness I have learned did not come through the mouths of my teachers. You’ve heard it before and I’ve heard it before: “you learn from life’s lessons, not from textbooks.” The question is: when does that saying become more than just a saying?

It happens when you realize your paycheck disappears; it happens when your marriage falls apart but you still hold on to love; it happens when you dedicate your heart, soul and life’s work to your passion and it is ripped away; it happens when your parents die and you lose the comfort in their voice; it happens after the dull crunch and brilliant shattering of steel and glass over the yellow stripe; it happens when you are diagnosed with a disease—any disease. At what age? Different for everyone. To be honest, sometimes never for the lucky few… Can you think of when it happened to you?

At 25, I’m just starting to digest these lessons. They may seem depressing but if you break them down, shine them up and really think, you can pull some gleaming jewels from the mess. It’s that simple. Mourn for the loss, but think of how you can use that to be a better person, be a better brother, be a better friend and a better husband. A depressing and life changing moment DOES NOT DEFINE YOUR LIFE unless you—and you alone—give it the power.

Yes, I’m only 25. I have seen all of the above happen to people so close to me it burns my throat and makes my blue eyes turn red. I have had cancer. I have lost my leg. I was put under and scarred to have a chunk of my lung removed. I have been dealing with the after-effects for over 2 and a half years. But as of Monday, October 27th, 2008, I was scanned and IT HAS NOT COME BACK. It will not come back. If it does, I know how to fight it…but, to be honest—that’s a battle I can leave behind me for now…forever.

and after all this I wish it was summer again…onward!
SDS

buffalo river state park, mn, 2008

buffalo river state park, mn, 2008

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